USED to fly by bicycle, he faces a heavy diagnosis without losing his dreams. Roberto Amore, journalist, talks about his coexistence with Parkinson’s disease. Having passed the milestone of ten years since the first ailments, Amore decides to put in a book the victories and defeats, the soft legs that lead him to climb the peaks that have made the history of cycling, the unmanageable legs that do not respond to stimuli and they end up imprisoning him at home.
In this “Fleeing with Parkinson” (Bertoni Editore), the author gives us an example of narrative medicine, the one that is a decisive part of the treatment. As the specialist Francesco Valeriani writes in the preface “even neurology must have a soul. The doctor-patient relationship cannot be reduced to standardized protocols and predefined guidelines, in the eclipse of the presence of the other and his unrepeatable subjectivity”.
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Amore talks about her relationship with doctors, as fluctuating as it can be in the presence of such a disabling disease. He asks himself questions, shares them with his family. In hindsight, he returns to the carelessness of certain specialists and to empathy with the last consulted. Now is not the time of the bike, but the author has a futuristic exercise bike at home. And luckily there is also a gym near the house.
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The book has an interesting service appendix on physical and rehabilitation activities that can help the patient in the fight against Parkinson’s. Among them stands the tango, which stimulates attention and control of the body, imagination and feeling. There is a new quality of life to be conquered.
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