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Farewell to Mathias, killed at the age of 7 by a rare and unknown disease

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Farewell to Mathias, killed at the age of 7 by a rare and unknown disease

NOALE – Throughout his life he has been cared for and cared for with affection and dedication. But after only 7 years that illnesswho was left without a name, took it away.
Noalebut also thehospice from Padova and many associations that take care of sick children, say goodbye to Mathias Ceron, the little Noalese who died on Saturday when he was only 7 years old. He was only 3 months old when he started getting sick. And from that moment the fight between mum Michela and dad Emanuele began against a unknown evil. «We have been taken over by the pediatrics of Padua and by neurologists who, in the absence of a diagnosis, have tried to tackle the problem from a clinical point of view “, say the parents. Unfortunately, however, theepilepsy it was just a symptom of a rare disease. “We have done all the possible and existing tests but it has never been identified. Mathias was tetraplegico, blind and with a delay in cognitive development and for all these years he has been followed by the pediatric hospice of Padua and by pediatrics, with the help of many associations who have been a family for us “.

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Michela had left her job to take care of him 24 hours a day, in a balance, made up of visits and treatments, which broke this winter, when Mathias’s conditions worsened.
“In February he was hospitalized in intensive therapy. They made us understand that it would not come out instead his improvement surprised the doctors. However, Mathias has never recovered some skills and the hospice has set up a small hospital in the house, to deal with his breathing difficulties. For the last month and a half we have kept him here close to us, to let him breathe love and domestic warmth ». Until Friday night when conditions plummeted and Mathias, returned to the hospice, passed away. But in so much pain Michela and Emanuele find the strength to thank the many people who have been close to them over the years and to launch an appeal. “Parents who are faced with a rare disease with such a heavy burden do not have the skills and find themselves alone.

For this reason, the help of the associations that support the work of public health is essential. For us they have been a family “they comment, citing associations among others”Parents of Our Family“Of Noale,”Arm wrestling Ricky for ever” e “the island that exists“. “We ask the institutions to invest in hospitals that deal with this area of ​​medicine and in paediatrics in Padua, which needs it. And we invite anyone who has the opportunity to support the associations that take care of children. We thank the many people who are close to us, even friends and colleagues who we have not felt for years: we feel their affection strongly ».
Il funeral is scheduled for Wednesday at 3.30 pm in the Archpriest Church of Noale.

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