Home » Marco Schreyl: “Everyone suffers with us” / His mother’s rare illness kept him …

Marco Schreyl: “Everyone suffers with us” / His mother’s rare illness kept him …

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Marco Schreyl: “Everyone suffers with us” / His mother’s rare illness kept him …

21.04.2024 – 09:00

Word & Image Publishing Group – health reports

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For a long time it was taboo for Marco Schreyl to talk about his private life. The TV and radio presenter (“The Sunday Show” on WDR 2, “In Conversation” on Deutschlandfunk Kultur) only tried to explain to a few people why he sometimes cried or behaved harshly. His mother was suffering from Huntington’s disease , a rare disease that affects the central nervous system and leads to progressive, sometimes massive psychological changes and movement disorders. It wasn’t easy for him to ask for her condition to be kept quiet. “I was often desperate at the time. When my mother called at night and told me nasty, loud things, I often thought: If this doesn’t get better, then that’s terrible. Doing my job the next morning was often just too much for me,” reports the 50-year-old in an interview with the health magazine “Apotheken Umschau”.

Enjoy every day – healthy or sick

With his book “Everything’s good? Most of it!” (Kiepenheuer & Witsch), he broke his silence for the first time and talked about the illness of his mother, who died in 2021. “Before that, there were a lot of sleepless nights and conversations with friends. But I firmly believe that – if there is something overarching – my parents are sitting up there and saying: Good that you told me, good that you “You’re busy with it,” he tells the “Apotheken Umschau”. As the son of a person with Huntington’s disease, he has a 50 percent risk of carrying the modified gene that leads to the disease. But so far he has not had himself tested for the gene. “There’s this saying: Live every day as if it were your last,” he explains. Whether with or without illness.

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Family and friends are also affected

He likes to take advantage of every opportunity to raise awareness for Huntington’s disease. “The relevance of research is perhaps low for such a rare disease. But the five to 15 people affected per 100,000 people are also important! And there are many more who are affected by the disease: behind every sick person there is a whole family and Circle of friends who suffer with compassion.”

This report is only free for publication if the source is cited. The health magazine “Apotheken Umschau” 4B/2024 is currently available in most pharmacies. There is lots of other interesting health news at and on Facebook, Instagram and YouTube.

Press contact:

Katharina Neff-Neudert, PR-Manager
Tel.: 089/744 33-360
E-Mail: [email protected]

Original content from: Wort & Bild Verlagsgruppe – health reports, transmitted by news aktuell

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