Home » Medical coaching: an aid to oncohematological patients and their caregivers

Medical coaching: an aid to oncohematological patients and their caregivers

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Knowing your disease to learn how to manage symptoms, adhere to therapies better and gain greater awareness also in the relationship with your doctor. These are some of the objectives of Medical Coaching, a free training course dedicated to patients with Chronic Lymphatic Leukemia and other chronic onco-haematological diseases and their families, conceived and implemented by the Renata Quattropani Foundation.

The humanization of care

Thanks to the progress of oncological therapies, survival for some types of neoplasms has increased more and more and in cases where the disease is not curable, the goal is to make the tumor chronic, controlling it for a long period and trying to maintain quality of acceptable life. In other cases, the malignancy itself has a slow progression, as in the case of chronic lymphocytic leukemia, chronic myeloid leukemia and multiple myeloma. “Precisely for this – he explains Giovanna Ferrante, president of the Renata Quattropani Onlus Foundation, dedicated to his mother who was a patient with chronic lymphatic leukemia – it becomes essential for the patient to acquire the ability to manage the disease, with new skills, with a view to humanising care “.

The Medical Coaching service

The Foundation’s goal is to offer support, totally free, to chronic cancer patients and their caregivers. This is why the Medici Project was launched in 2017. Patients. Parenti, focused on a Medical Coaching service, provided by professional coaches. “Medical Coaching – continues Ferrante – is a profession still little known in Italy, but already established in the United States and in Anglo-Saxon countries. The Medical Coach is the patient’s ally in the work of optimizing relations with relatives and doctors, along the path of assumption of awareness and responsibility in the presence of the pathology. The free accompaniment service is aimed at identifying concrete tools to overcome the practical and emotional difficulties deriving from chronic illness “.

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The patient is not his disease

Among the objectives of the Medical Coaching path is to improve the quality of life through the exploration of one’s own resources: “The onset of a chronic onco-haematological pathology – explains the president of the Foundation – involves important changes that make it difficult to accept one’s own state and affect daily life, but it is good to understand that the patient is not his disease “. The program also aims to raise awareness and support relatives / caregivers in the problems they encounter in the management of daily life with their family member and to find methods and tools through which the patient reaches a good awareness in relations with the doctor and therapy.

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How does it work

The Medical Coaching Service takes care of supporting the chronic patient and his family beyond the hospital walls and is carried out by professional Coaches. “The method – explain the Medical Coaches Roberto Absent e Michela Serramoglia – develops intrinsic motivation and the acquisition of a new responsibility in the chronic onco-haematological patient, indispensable tools for dealing with the pathology. It does not deal with medical or psychological aspects, but with everything that revolves around the problems generated by the presence of the disease. “The path begins with an individual cognitive interview, where the coaching methodology is presented. Afterwards, you can participate in 14 group meetings over 6 months divided into 5 phases The Service is completed by an individual coaching lasting six months called Coaching time, for a total of one year of service Greater difficulties in reaching the location where the live meetings are held.

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A path also for relatives

Through a coaching path, the family caregiver also develops greater awareness and finds a greater balance for himself and for the patient. “While the patient defines new goals, takes effective actions and learns to draw on their natural resources and strengths – explain the Coach Absente and Serramoglia – the caregiver, in parallel, develops a new awareness about the decisions taken by the patient to thus being able to support and support him towards the achievement of his goal. With the caregiver you also work on identifying any problems or difficulties in communication, to then go on to develop and train more effective communication “.

The service also online

Starting from 2020, the entire course can also be provided online through the Zoom platform in order to be able to offer the service even to patients who have greater difficulty in reaching the location where the live meetings are held. Each videoconference meeting, which provides for the active participation of both patients and relatives, can accommodate a maximum number of 12-15 people and lasts an hour and a half every two weeks.

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