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Rare diseases, 17% of patients travel for treatment

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Rare diseases, 17% of patients travel for treatment

Ilaria Galetti is 49 years old, with curly hair, a lively look and an eloquence just slowed down only by her slightly labored breathing. She lives in Toscolano Maderno, on Lake Garda and goes around with the stroller, a portable oxygen cylinder that weighs about 4.5 kg and has an autonomy that varies from 2 to 6 hours. Ilaria suffers from pulmonary interstitial disease, the leading cause of death in patients with systemic sclerosis, responsible for about 35% of related deaths.

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