Rome, April 26 (beraking latest news Health) – Taking care of joint health and promoting its well-being thanks to new services for patients, training opportunities with the most important haemophilia specialists, and a site full of clear and useful information in everyday life. In addition, the possibility of performing joint screening thanks to portable ultrasound scanners that are arriving in many Italian haemophilia centers. These are the ingredients of the success of ‘Articoliamo’, a campaign supported by Sobi with the patronage of FedEmo, created to promote joint well-being in people with haemophilia, a rare coagulation disease that has arthropathy among its most frequent complications.
The ‘Articoliamo’ tour, now in its seventh stage, continues its journey through Italy and lands in Puglia on 27 April 2021 at 5 pm with an online meeting. To participate, simply connect to the zoom platform (link: https://us02web.zoom.us/j/86720291187#success) and meet in live streaming Giuseppe Malcangi, of the Uosd Hemophilia and Thrombosis Center of the University Hospital Policlinico di Bari, – Pediatric Hospital Giovanni XXIII-University-Bari, Stefania Longo, Medical Clinic II-Polyclinic-University, Bari, Giuseppina Lelli, Physical Medicine and Rehabilitation-Polyclinic-University of Bari.
During the meeting “Ultrasound in haemophilia: a useful and sustainable non-invasive diagnosis”, promoted by Almet Onlus (Association for the fight against hemorrhagic and thrombotic diseases), the themes of haemophilic arthropathy, personalization of therapy, joint ultrasound, as a follow-up tool to prophylaxis starting from pediatric patients, and clinical cases will be illustrated. Objective: to sensitize patients on the importance of prophylaxis of factors with a prolonged half-life and on the key role of ultrasound to identify damage to the joints early and avoid severe arthropathies, as explained by Mario Schiavoni, president of Almet Onlus, Giuseppe Malcangi and Antonella Coluccia.
“Today, thanks to the ease of execution, reproducibility, practically unlimited feasibility and cost sustainability – says Mario Schiavoni – muscle-joint ultrasound is a great resource for the treatment of haemophilia. And above all it is a great support to the anti-haemorrhagic prophylaxis, since periodic checks with muscle-joint ultrasound, complementary to pharmacological therapy, help to individualize the dose and timing of the replacement treatment and to significantly improve the clinical result. All to the advantage of the patients’ quality of life “, underlines Schiavoni.
“Thanks to the flexible and customizable treatments currently available and the diffusion of ultrasound we can recognize the appearance of small osteoarticular alterations early and intervene effectively with drug therapy and physiotherapy, to stop the progression of joint damage”, explains Giuseppe Malcangi. “Ultrasonography, diagnostic imaging and ultrasound screening – the latter to be performed periodically in specialized centers – represent effective and innovative diagnostic tools that allow to prevent damage to the musculoskeletal system”, adds Antonella Coluccia. ” But we must not forget the importance of adherence to therapy, even in periods when physical activity is reduced, which is essential for improving the quality of life of patients and preserving their joint health “.
“Sobi has always considered it important to promote the care of the person with haemophilia that takes into account aspects and variables that go beyond the drug alone”, says Sergio Lai, VP and General manager of Sobi Italy. “Our commitment in leading the campaign ‘We articulate’ throughout Italy was born from the deep conviction that, only through multidisciplinary work, it is possible to allow people with haemophilia to open up to a free and full life, protected and safe. It is important to remember that all this is possible thanks to the correct therapeutic strategies available and to a clear and complete information for the patient, for a life without compromise, protecting the joints and improving general well-being ”, he concludes.