Home » Rare diseases: surgeon, ‘micro-bleeding control, true haemophilic prevention’

Rare diseases: surgeon, ‘micro-bleeding control, true haemophilic prevention’

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Rome, April 15 (beraking latest news Salute) – “In the last 9 years, with a pool of specialists (haematologist, orthopedist, orthopedic surgeon and rehabilitator) of the Santo Spirito hospital we have managed to follow about 300 haemophilia patients, of which 70 have been treated surgically, most partly subjected to operations involving the lower limbs (knee replacement surgery is the most performed). But the hope is that in the future the number of people who will have to undergo surgery will decrease, thanks to increasingly personalized and tailored prophylaxis of patient, not only pharmacological, but also intended as an early diagnosis. Today we still find ourselves dealing with the outcomes of the disease, but in the future I hope that this will no longer happen or at least that patients with devastated joints will arrive less and less “.

This was stated by Filippo La Cava, orthopedic surgeon of the Santo Spirito hospital in Rome, in his speech at the online meeting organized by ‘Articoliamo’, a campaign supported by Sobi with the patronage of FedEmo, created to promote the well-being of the joints in people with haemophilia, a rare coagulation disease that has arthropathy among its most frequent complications.

The initiative has reached its fifth stage and yesterday landed in Lazio, where there are more than 600 people suffering from haemophilia (in Italy there are over 5 thousand), a rare coagulation pathology, which can lead to joint problems and the progressive reduction of mobility. At the center of the online meeting the multiple aspects of the disease, including the role of physical activity, the importance of the multidisciplinary approach, the treatment and prevention of joint damage.

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Also thanks to ultrasound, “with which we can highlight conditions that otherwise we would not be able to see easily – continued La Cava – we will be able to give a better future to haemophilic patients who still today have no muscles due to joint damage. randomly, the same rehabilitators have difficulty in treating patients with these conditions “.

The expert then raised the alarm for post-prosthesis infections: “If in the patient who does not have haemophilia the risk of undergoing infection is about 1.9%, in the patient with haemophilic pathology the risk of infections rises to the 6-7%. This makes us understand that these are patients who have comorbidities, for which the problems add up “.

Fortunately, “treatments by haematologists have improved over time, so we orthopedists are increasingly refining the strategy, treatments and therapeutic choices”, concluded La Cava.

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