A response from the ministry is expected within the year.
The Council of the Lombardy Region, on the proposal of the Vice President and Councilor for Welfare, Letizia Moratti, declared coherent and compatible, with the regional health planning, the request of the ASST of Monza to change the area of recognition of the future Irccs San Gerardo dei Tintori of Monza into Medicine for rare diseases.
San Gerardo: application approved for the recognition of the hospital as Irccs
The Board has given a mandate to the Welfare Directorate to transmit the provision and further technical documentation to the Ministry of Health for the continuation of the recognition process. The novelty concerns the field of care and research activities by the subjects who will converge in the IRCCS (Institute of Hospitalization and Scientific Care).
In particular, it is theSan Gerardo hospital, of the Monza and Brianza Foundation for the baby and his mom (Fmbbm) and the Tettamanti Foundation.
In fact, the new IRCCS will deal with research and study of biomolecular mechanisms and the development of innovative therapies in the preclinical and clinical field of genetic diseases, both at the onset in pediatric age and in adults.
These are all rare diseases for which San Gerardo and Fmbbm are already part of the European reference networks (Ern), namely: craniofacial malformations on a genetic basis, rare haematological diseases and liver disorders, congenital metabolic diseases and also rare pulmonary and renal dysfunctions , rheumatological and oncological, both in adults and children.
Importance of the study of rare diseases in children
“The strengthening and high specialization of research – comments the councilor for Welfare, Moratti – through technological innovation and multidisciplinary and multisectoral teams, are qualifying elements that give added value to our healthcare, which is already of excellence. A commitment that in this case, if possible, is even more significant. In fact, attention to rare diseases is already fundamental, because they often do not receive adequate responses to needs, precisely because they are little known. But this attention becomes even more relevant in the face of situations that involve the smallest citizens: our children ”.
Irccs by the end of the year
“Bringing the request presented by Asst of Monza to the Ministry of Health therefore – continues Letizia Moratti – goes in this direction, as well as responding in a broader perspective to the reorganization of the hospital network. For health care that is therefore increasingly avant-garde and attentive to dynamics, with the clear aim of treating the person even before the disease “.
“The resolution concretizes – concludes the commissioner – the formal fulfillment that it was necessary to activate to get to the end of the year with the recognition in Irccs of San Gerardo”.