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Turin 23 October | Demonstration in Piazza Castello

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Now they want to be heard because they have been ignored for too long. They ignored them when they suffered excruciating pain that prevented them from even standing; they ignored them when they denounced a health system that does not want to deal with the problems of gender medicine; they are still ignoring them by not granting them the rights that public health grants to those with a disease.

These are the women who this morning, Saturday 23 October, gathered in Piazza Castello in front of the headquarters of the Piedmont Region for the national mobilization day organized by ‘Non una di less’ to ask for the recognition of vulvodynia, pudendal neuropathy, fibromalgia, endometriosis and pelvic pain. Chronic disabling diseases that strongly affect the quality of life of women and that are not studied causing severe delays in diagnosis.

The search for a diagnosis, according to the data provided by ‘Non una di less’, can last for years: vulvodynia has a diagnostic delay of almost 5 years, compared to 16% of women who suffer from it; endometriosis affects 10-15% of women and people with uterus and has a diagnostic delay of 7 and a half years; fibromyalgia affects 1.5-2 million people – with a female-to-male ratio of about 9 to 1 – and with a diagnostic delay of about 5 years.

Delays that affect the lives of women suffering from these diseases that report consequences on physical, but also psychological and social health. “We have heard phrases such as:” it’s all in your head “,” it’s just stress “,” have children and you’ll see it pass “,” having painful periods is normal “,” you should change partners “,” it’s normal that women suffer during sexual intercourse “,” it is nothing, being tired happens to everyone “, say the women who wanted to bring their testimony in the square. Stories often wet by the tears that flow after years of suffering and humiliation.

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This is why they wanted to talk about their discomfort and claim their rights in front of the headquarters of the Piedmont Region, a body that deals with the Piedmontese health system. Health system that does not guarantee anything to women suffering from these diseases who are forced to pay from their own pockets from 300 to 500 euros per month for medicines. Medicines that have been symbolically thrown on the ground in Piazza Castello: “These are the boxes that we have collected, testifying to the costs we are forced to bear and which have not been passed on to us by the national health system. We put them here to ask for recognition of our pathologies and major public clinics that specialize on these issues “.

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