Rare diseases, scientists scrapped: “Nobody will save the butterfly babies anymore”

Butterfly babies risk not opening their wings anymore. And bubble babies not to come out of the plastic wrap. Their diseases are too rare, the treatments too expensive. So the pharmaceutical companies that supported them for a while have decided to pull the plug. If the children in the bubble, by sheer circumstance, could continue to rely on institutions with strong shoulders such as Telethon and San Raffaele, the butterfly children will lose the biotech that until recently prepared a cure for them.

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