Home Health the 39-year-old has six months to live

the 39-year-old has six months to live

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the 39-year-old has six months to live

First the thumb cramps then the terrible discovery: an incurable motor neuron disease that left her only a few months old.

Alisa Maclom-Hutton first realized something was wrong when she started suffering from thumb cramps while combing her daughter. In 2013, after losing the use of her arm, she was diagnosed with motor neuron disease that forced her to give up her job, the Manchester Evening News reported.

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From thumb cramp to motor neuron disease

«When the doctor told me that I had motor neuron disease (MDD) I didn’t even know what it was – explains the 39-year-old – the situation was also deteriorating and my outlook on life was not exactly rosy. I came home stunned with a flyer in my hand on Mnd and was basically told there was nothing they could do. I got home and we were having a new boiler installed and all the gas men were there and I went outside and sat in the rain and cried. I think I stayed there all night».

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What are motor neuron diseases?

Motor neuron diseases are characterized by a progressive deterioration of the nerve cells involved in muscle movement. This in turn leads to a deterioration of the muscles stimulated by these nerves, which weaken and are no longer able to function normally. Thus this limiting disease affects the sufferer’s ability to walk, talk, eat and ultimately breathe. The best known motor neuron diseases are: ALS, primary lateral sclerosis, progressive muscular atrophy, progressive bulbar palsy and pseudobulbar palsy. Currently, doctors do not know the exact causes of all these pathologies.

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The difficult moments

«Then came the moment I feared the most: telling my six-year-old daughter and not terrifying her at the same time».

So remember those moments Alisa. «Somehow I did and made a pact with her that I wasn’t going to die. This still keeps me strong nine years later». Ailsa is now unable to walk and has lost the use of her arms. She can watch TV independently by just using one finger and thumb to use the remote control. She is no longer autonomous and has carers who do everything for her, from feeding her to washing her and sometimes when she is too tired of her they also speak for her. Ailsa has more than 350 MND symptoms, including chronic fatigue, eye problems, constant rashes, kidney stones and nausea, and she can suffer from up to 200 of these symptoms per day.

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She doesn’t give up

Doctors say she has six months left to live, but she continues to struggle and think differently: she said she intends to live long enough to see a cure for her devastating disease. «I have a document that says I am less than six months old, however I don’t listen to these things. I’ll survive long enough until someone finds the right cure to save me. My spirit is still so strong and it can’t be broken that easily. My daughter Isabella is gorgeous inside and out, so polite, really fun and just lovely to be with so I’ll stick around». A fundraiser has now started to buy a new wheelchair for the woman and to try to financially help her daughter since she can no longer bear her expenses.

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