The information of the Messina investigation into the NeMO Sud medical heart (which took care of 5 thousand Sicilian and Calabrian sufferers from 2013 to 2021) and the Polyclinic of the Sicilian metropolis is discovering nice resonance on web sites, newspapers and TV. Here we don’t go into the reconstruction of the accusations by the prosecutor’s workplace, nor any potential protection methods. This is neither the place nor the time.
However, what must be clarified instantly is what we’re speaking about. Why virtually no native or nationwide media has to this point defined to readers what Nemo facilities are. It’s price doing, to get the total image and get an knowledgeable thought. After that, justice will take its course and if duty is confirmed, applicable measures will observe.
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The NeMO (NeuroMuscular Omnicenter) medical facilities are extremely specialised facilities, based in 2008 and designed to particularly reply to the wants of these affected by neuromuscular illnesses resembling Amyotrophic Lateral Sclerosis (ALS), muscular dystrophies and muscular atrophy spinal twine (Sma). These are extremely disabling pathologies with a critical social influence, characterised by lengthy and sophisticated remedy and care pathways, for which, in the mean time, there is no such thing as a chance of restoration. These illnesses in Italy have an effect on round 40 thousand folks. People who battle to search out solutions to their particular care wants in commonplace healthcare providers.
It is a singular healthcare mannequin as a result of, along with offering a multidisciplinary strategy, it’s based mostly on an idea of care that has as its heart the pursuits and desires of individuals and their households. At the second NeMO has seven places of work: Milan, Rome, Arenzano (Genoa), Naples, Brescia, Trento and Ancona. They had been joined in April 2024 by the NeMO Bologna Center, on the Bellaria Hospital. NeMO Bologna represents the primary completely public heart based mostly on the consolidated care mannequin of the NeMO Centres. In all facilities, healthcare providers are supplied inside and on behalf of the National Health Service (NHS), due to this fact with none prices borne by the affected person.
The community is managed by the Serena Foundation, a corporation made up of the Telethon Foundation, the Italian Union for the Fight in opposition to Muscular Dystrophy (Uildm), the Italian Amyotrophic Lateral Sclerosis Association (Aisla), the SMA Families Association, the non-profit affiliation Slanciamoci and the Vialli and Mauro Foundation for Research and Sport. The presence of historic affected person and household associations is due to this fact constituent, as is that of a few of the most necessary non-profit organizations in scientific analysis. It is price mentioning that these are non-profit entities and have been topic for many years to all of the administration, fiscal and administrative controls required by regulation.
The Messina centre, closed in 2021, was as an alternative managed by one other basis, the Aurora Foundation: a physique much like the Serena Foundation, whose members had been the identical, with the addition of the “G. Martino” (residence of NeMO Sud) and the University of Messina.
The figures
These are the general numbers of the nationwide community:
121 devoted beds with a median saturation price of 98% and a median size of hospitalization of 15 days. 21 Day Hospital beds 10 rehabilitation gyms 340 professionals 2 medical analysis items
In whole: over 6,500 folks with neuromuscular illness taken care of within the final yr and round 20 thousand beneficiaries from 2008 to as we speak.
The care and analysis mannequin
The NeMO mannequin entails a multi-specialist workforce composed of roughly 20 medical specialties current within the division, which work collectively to ensure continuity of care, ranging from each practical want of the particular person experiencing a pathology outlined as extremely complicated in care. These are the distinctive options: multidisciplinary strategy, due to which all of the medical specialties obligatory for the remedy path can be found on the affected person’s bedside when obligatory, with out the necessity for transfers for consultations; full integration of medical pathways for which the middle gives customized remedy plans, programmed throughout all ranges of care and relying on the particular ages of the sufferers; continuity of care between the division and return to residence; between medical administration and scientific analysis.
NeMO facilities are additionally on the forefront of nationwide and worldwide scientific analysis networks on neuromuscular illnesses, participating in the primary medical trials, according to one of the best worldwide requirements. In the final yr alone, there have been 84 energetic medical trials.
The assembly with Delpini
In May 2022 the Archbishop of Milan, Monsignor Mario Delpini, visited the middle of the Lombard capital the place he met Antonio, Marta, Cosimo, Klisman, Laura and all the opposite sufferers with ALS, SMA, muscular dystrophies and neuropathies. «We reside within the Land of the Unfinished as a result of we’ve not but arrived the place we wish to be:», stated Delpini, «it implies that we aren’t even capable of say thanks as we wish to say it. It then turns into important to proceed to work laborious. The unfinished generally mortifies us, as a result of we wish to see the aim and the outcomes are generally mortifying. The mortification of being within the Land of the unfinished, for me as a priest, is blessed by God, who most popular to be amongst males within the Land of the unfinished. When he died on the cross he stated all the pieces is completed. This implies that it isn’t success that ought to encourage us, however how a lot it’s price placing our life into it. And what I noticed as we speak is proof of the standard of the Land of the Unfinished».