Home » Hypophosphatasia (HPP) – hardly anyone knows about this rare disease

Hypophosphatasia (HPP) – hardly anyone knows about this rare disease

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Hypophosphatasia (HPP) – hardly anyone knows about this rare disease

Munich – Hypophosphatasia (HPP) is a rare, genetic bone metabolic disease with diverse and non-specific symptoms that can easily be confused with other diseases. People who suffer from this disease are talked about far too rarely. That’s why, together with the patient organization HPP Deutschland eV, we use the HPP Awareness Day, which takes place every year on October 30th, to raise awareness about the disease.

Giving HPP a face

With our campaign “Looks like… but it’s HPP!” We want to draw attention to the people who live with HPP: They describe their experiences with HPP in short, animated graphic recordings Symptoms and the path to the correct diagnosis, remember theirs Childhood and youthtell about theirs Living with the disease and share yours Wishes and goals. One aspect always remains central: those affected want community, exchange and support – and they can find this in self-help groups like HPP eV.

The videos and further information about HPP and the “Looks like… but it’s HPP” initiative can be found at www.lebenmitHPP.de.

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