The second appointment of 2021 of #SMAspace is coming, the virtual square dedicated to spinal muscular atrophy, a space for dialogue between clinicians, patients and caregivers that will take place online on Friday 2 July at 5.00 pm. The project, promoted by OMaR-Osservatorio Malattie Rare & FamiglieSMA and with the unconditional contribution of Roche Italia, aims to break down that wall of embarrassment that patients, accompanied by family members, can often feel when asking questions considered “inappropriate ”, Which instead deserve attention and need answers; for this reason, during the meeting – moderated by the Director of OMaR, Ilaria Ciancaleoni Bartoli – it will also be possible to ask questions anonymously. At the end of the event a moment of socialization and entertainment.
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