(ANSA) – BARI, 22 FEB – Paolo, the boy of just over two years of age from the province of Bari suffering from SMA1, began therapy today with the first administration of the drug Zolgensma.
His family writes on Facebook on the page dedicated to him. The child is being treated at the Bambin Gesù pediatric hospital in Rome with the financial support of the Puglia Region. The rift between the governor Michele Emiliano and the professor Pierluigi Lopalco took place on this matter, so much so that the latter decided to resign as councilor for health because he believed that, on the basis of the stakes set by Aifa in Italy, the little one could not be subjected to gene therapy from which he would not have benefited. “Today is a super day – write Paolo’s parents – finally after a long wait our superhero has received the administration of the drug Zolgensma at the Bambin Gesù pediatric hospital in Rome. We thank all the team of professor Enrico Bertini who allowed Paolo to have a chance facing this challenge with us. We are still incredulous but really happy that the dream of giving our little Paolo more hope has finally come true “. “At the moment – they continue – everything is going well, the next few weeks will be the hardest to overcome but today we want to wish our superhero a wish. We wish you little warrior to have more and more strength, to never give up and to show everyone we, who every day will be able to win a new challenge, wish you a happy life with many joys for the small but great goals you will reach “. (HANDLE).
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