BPI Federal Association of the Pharmaceutical Industry
Berlin (ots)
As a supporter of Initiative “Boy in the Bubble” we cordially invite you to
Press conference on the occasion of the live event in front of the Berlin Reichstag
Wednesday, April 26, 2023 at 11:00 a.m
in the conference center of the House of the Federal Press Conference, room 1,
Schiffbauerdamm 40/corner of Reinhardtstrasse 55, 10117 Berlin
On the podium:
Prof. Dr. Volker Wahn – Charité – University Medicine Berlin
Gabriele Gründl – dsai eV – patient organization for congenital immune defects
Simone Naruhn – CSL Plasma
Christian Wieszner – CSL Behring Germany
Dr. Christian Rybak – Ehlers, Ehlers & Partner
Moderator: Andreas Aumann, BPI eV
Why is?
In the 1970s, doctors had to watch helplessly as people with immune deficiencies died from the slightest infection or had to live in isolation. An impressive example of this is David Vetter, who at that time became notorious as the “Boy in the Bubble”. He had to live in a sterile plastic bladder from birth because of a severe, combined immunodeficiency. Thanks to antibodies (immunoglobulins) obtained from human blood plasma, people with severe immunodeficiencies are protected today – David Vetter stands like no other for what life would be like if there were no immunoglobulins.
Immunoglobulins are therefore indispensable for many patients, but they are not always consistently available. Supply bottlenecks have been clearly noticeable in their everyday lives for a long time (e.g. by reducing dosages, extending the application intervals) – with sometimes dramatic effects. Many patients are therefore exposed to a threatening situation. It is important to ensure the supply of immunoglobulins, and there are concrete proposals for this.
In order to draw attention to the situation of those suffering from immunodeficiency,
Wednesday, April 26, 2023 from 11 a.m. on the Reichstag meadow
simulated what life would be like today without immunoglobulins.
In order to raise awareness of this completely avoidable future scenario, we present this worst-case “life in a bubble” in a clear and tangible way.
You will have the opportunity to talk to patients on site.
We look forward to your participation.
Please register directly with the BPI press office for the PK and the live event at: [email protected].
Press contact:
Andreas Aumann (press spokesman), Tel. 030 27909-123, [email protected]
Original content from: BPI Federal Association of the Pharmaceutical Industry, transmitted by news aktuell